TECHNICAL CONSULTANT
TTPNetwork
A patient led organisation supporting those diagnosed with Thrombotic Thrombocytopenic Purpura (TTP). They are the UK's primary patient support group for patients diagnosed with TTP and provide advocacy, information and support for patients and their families, and offer support to health care professionals.
They are a key voice in the public health sector and regularly work with other stakeholders to improve knowledge and services for TTP patients.
How do we work together
T{h}onix provide technical consultancy services to TTPNetwork.
Having worked with the founder of TTPNetwork for a number of years we now provide regular technical consultancy services to the organisation. As a volunteer led organisation it has previously been challenging to embed digital systems. The last year has had a focus on creating a strong base for managing data using technology solutions that maximise budget and can grow to match the organisational needs. In the last year we have:
- Implementing a new database (Hubspot) to help them manage relationships
- Implementing a new process (supported by Hubspot) to allow them to onboard and manage volunteers
- Transitioning their direct donations to to new platform (Donorbox)
T{h}onix also provide technical strategy advice to help guide how technology can help the charity reach it's organisational goals
We love working with TTPNetwork. They are a dedicated volunteer patient led organisation committed to ensuring patients with TTP receive the best care available to them. You can read more about the fantastic work TTPNetwork do on their web site https://ttpnetwork.org.uk
"Having worked with Nicola on projects in different organisations, she was my first port of call when needing to bring TTPNetwork into the 21st century.T{h}onix came out well among other quotes we obtained for comparison and knowing how Nicola works it was an easy decision to use T{h}onix for our transition to a contact management system.Nicola takes great time and care to fully understand how our organisation works, who our key stakeholders are and how we prefer to interact with them. Nicola has set us up on Hubspot, including a telephone facility and has spent time to upskill our volunteers to use the system. Nicola has even recorded instructional videos that can be watched when our memories need refreshing. This is particularly important for our organisation as we are peer led and a symptom of TTP can be poor memory.Because she understands us so well, she has been able to identify other ways in which we could work more efficiently using tech. Ways that we would never have thought of. As a result we have a dedicated consent form that automatically files itself to the client record. We asked Nicola for help to streamline our donation platform. She identified a product, helped set it up and has also liaised with our web developers to ensure that the donations page is fully embedded on our website.Nicola is easy to work with, professional and committed to ensuring we use our charitable funds wisely. I cannot recommend Nicola and T{h}onix highly enough."
Interested to understand what TTP is? Watch this video!
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